Then & Now

Five years ago to the day, we sat in this room, our apartment with Ruthie Lou. The couch has changed, the room has not. At the time, Ruthie Lou's neurologist didn't think she would survive through the night so she captured this photo, in the case that it was the only family picture we would possess outside the hospital walls. She lived another 12 days.

Yesterday we walked through those doors again, this time with our family now complete with our two beautiful boys. When we stepped in those doors at George Mark the first time, it was to say goodbye to our girl, we knew why we were there, we were bidding our baby farewell. The most beautiful time in her life was there, it is her home and we will always remember the importance of GMCH, in our life and in our healing.

But this time we went to introduce her littlest brother to the George Mark family, to share the love that he has brought into our life as well. Adam is now older than his big sister will ever be, he has surpassed her 33 days. To hold him, healthy, growing, changing and thriving, reminds me of all the things I missed with his sister and how fleeting my time with her really was. When she was living, time stood still, the world stopped moving and her brief lifetime changed mine. But now, 5 years later it seems like I have lived someone else's life, with only the heartache of missing her to remain.

For the first time, Reid asked to see the apartment that we shared with his sister and we sat on the same couch that we held Ruthie Lou on, but now with her two brothers. It was bittersweet, the closest that we would all be together as one family. These pictures of our family and with our children are sacred to me, sitting in the same spaces sharing our pure love for them. My only wish is always that they could all be in the same picture mfor real.

I love our family. I love the life I now live but it will forever be missing a third of my heart, the part reserved for my babies. The missing never leaves, the wondering never stops, and as I watch my boys and the children I'm surrounded with-I always ache for the daughter I'll never see grow.

​My smile is true, I live in this moment, but the pain of living without my child is real every day.