Science is an incredible thing, but hope, faith and miracles are much more powerful. The spinal/lumbar puncture that the drs performed yesterday revealed a chromosomal abnormality which may (or may not) be the cause of Ruthie Lou's continued seizures. Typically, after the cooling treatment is complete and the baby is rewarmed, it should only take a few days for the seizures to "turn a corner" and the brain to relax. However, this is not happening for our little Ruthie Lou. So, the drs are continuing to run tests and adjust/readjust her seizure meds until they can find the cause or control the amount of seizure activity that she is having. At this point, the Internet is a frightful thing as it near always reveals the worst case scenarios so until Monday when we meet with the geneticist, we are trying to be patient to hear what exactly this means for our sweet little girl. This is one of the last things that a parent wants to hear about their sweet innocent precious little baby and so Chris and I have just been processing the potential what-ifs and unknowns of Ruthie Lou's & our future. We can't begin to wrap our heads around what any of this means, the lesson in this or the "why her, why us" thoughts that are on the forefront of our minds. And until we know more, all of the questionable unknowns are irrelevant.
One thing we do know for certain is Ruthie Lou CHOSE us. She chose us to be her parents and trusted that we would love, care and protect her unconditionally. We have all along believed that she was a miracle from the moment we knew we were pregnant with her. She was meant to be here, meant for us & we were meant for her.
So tomorrow, as many of you shared that she will be on your prayer lists or chains at church, we will be praying here along with you. No matter your denomination, convictions or beliefs, please pray that this abnormality is manageable. Pray that the geneticist, drs and nurses can shed light as to how to help our little angel. And please, please pray that the purpose Ruthie Lou was brought to us can be fulfilled, that she may be blessed with a wonderful healthy life surrounded by her friends and family who love and support her, no matter what this recent test result reveals. So once again, science is an incredible thing, but hope, faith and miracles are much more powerful.
I am mama of three beautiful babes; two sons whom I have the privilege of raising and my daughter who lived for 33 sacred days.