Happy One Week Birthday, Ruthie Lou! The fun news for today is Ruthie Lou opened her eyes last night! Unfortunately, it was the middle of the night so only the nurse saw but it was progress! On the other hand, she is still in transition from her warming treatment and had to be put back on one of her seizure meds last night so she is back to peacefully sleeping for a few days... Many of you have asked when Ruthie Lou will be coming home and I wish we could tell you. The nurses tell us to celebrate the small victories and not to get too overwhelmed with the big picture and so that is what we are doing. Yesterday was a BIG day for Ruthie Lou, her second ambulance ride to her first MRI, it takes a lot out of a newborn! So while her MRI looks good and we are SO gratefully relieved, our little girl has quite a recovery ahead of her. We were fortunate to have a brief phone conference with one of Ruthie Lou's doctors this morning and at this point next steps are weaning her off some of her seizure meds which they will attempt on Thursday. After that, they can reassess and go from there and begin to treat her as a new baby learning to feed, move, cry, etc. It looks like she will be here at the very least a week longer or maybe even two. At this point, Chris and I can only think one day at a time because the big picture is unknown and that is overwhelming right now! So, that said, we are moving ONE DAY AT A TIME and celebrating the small victories. Today our daughter is getting healthy, in safe hands being taken care of by the best team and for that we are so grateful!
I am mama of three beautiful babes; two sons whom I have the privilege of raising and my daughter who lived for 33 sacred days.