I can feel myself taking the small steps to regain independence and it feels so good. Exhausting, but good. I celebrate all the small victories and am grateful every day to wake up, live in this lifetime, and for the opportunity to heal. Even though my energy and stamina last only about one hour every day, those thoughts of gratitude are constantly on the forefront of my mind.
I am entering the next stage of healing which is active recovery. And let me tell you, I say ACTIVE because it is!! Every day I attend 1-2 appts to actively support the recovery from surgery, chemo and radiation. It’s so crazy to think that before my diagnosis I was a healthy person. No aches or pains, just a noticeable loss of energy. But now due to the treatment that saved my life, I am learning how to do things correctly that I never even had think about such as speaking, swallowing, turning my head, lifting my arm and resting. So this is a week in the life of recovery:
Monday: Acupuncture, Physical Therapy
Tuesday: Speech/Swallow Therapy, Chiropractor
Wednesday: IVC, Mineral and Nutrient Infusion
Friday: Pain Management/Active Release Therapy
In the midst of those appointments I do make time to rest. Those are doctors orders and they’re the experts! I limit visitors because my white blood count is still very low and to engage with others steals much needed energy from my family at this point. But I make sure to take a nap, do some writing, or watch a movie/show on TV. In fact, the majority of the day is still in bed.
Although my body is healing, my brain is pretty active! Thankfully my anxiety has subsided and my thoughts are more into creating again. It feels good to be “back in my body”, so to speak. Remaining patient for my body to catch up to my mind is a true practice of slowing down and remaining present, but if it means a full recovery (which I plan on having), I’m up for the challenge! And I have all the love, support, dinners, childcare, and donations of my friends and family to thank. They have provided me and my family the time and space to dedicate to healing and we are eternally grateful. I could not do an ounce of this without knowing I had a crowd of cheerleaders behind me. And, THAT's what life is about.
I had many firsts this week, including making my family dinner! I will start with that exciting news because food is my favorite, but there are many (more important) firsts to share! But each victory, large and small, are celebrated in my home and in my heart every single day. Beyond cooking dinner this week, I:
And THAT is the biggest one, being on my own with my youngest son. He was not even 2 when I got diagnosed and I feel such sadness in what I had to give up because there was no alternative. Breastfeeding stopped before either of us were ready, our nighttime routine was severely interrupted but mostly, it brings tears to my eyes that I couldn’t be alone with him for the last 5+ months because I couldn’t take care of or lift him. It breaks my heart, in fact. I do however, find comfort in the fact that he is so resilient and doesn't seem to be affected at all by the changes in our home. It brings tears of joy and gratitude that he is so loved at his daycare, that my amazing husband manages our family without complaint, and that my friends & family have helped with both our boys-many times while I was sitting in the same room.
It's amazing to think how in an instant life can change, yet I am no stranger to that reality. But this is life-and I am so grateful for LIFE💞 Here's to more FIRSTS!
Each day is continually becoming better than the last. During treatment I had two wishes; to be well enough to dance with my brother at his wedding and to eat, taste, and swallow Thanksgiving dinner with my family. Those two events were only two weeks post-treatment and only one week from each other. It was a high expectation.
As the weeks of treatment accumulated in my body and continued to affect me after completion, I was so nervous to attend both the wedding and our family meal. But, I’m so excited to share that I made it! I successfully went and felt present at both the wedding and Thanksgiving
Being surrounded by wedding guests was a huge change from my medical team, patients, and those driving me to and from treatment. I had successfully spent 8 weeks resting during chemo and radiation in the comfort of my home (other than a quick appearance at a fundraiser in my honor). And I stayed home intentionally. I was not about to chance an illness that would delay my treatment and risk missing the most important day of my brother’s life, I love him and his wife too much.
As the day approached, I felt such anxiety about how the weekend would go, a road trip, a hotel stay, large groups of people, dressing up, conversation, eating, etc. So many unknowns, but so important to be there. And not to mention, I wasn’t eating actual food yet.
So wedding weekend, I tried soft foods. Excitedly, I could swallow soup, yogurt, and ice cream but with damaged taste buds could not taste what I was eating.
At my family’s pre-Thanksgiving the next weekend, my taste buds had mostly returned almost overnight it seemed. That first bite of stuffing and gravy, I could not wipe the smile off my face. I TASTED IT!! And then I tasted mashed potatoes, jello, french onion dip, and pie...anything soft or that which could be smothered in gravy or whipped cream! But my mouth was still so painfully dry with blisters, I was pretty worn out and spent a fair amount of time fighting sleep on the couch as Ilistened to the festivities around me.
5 days later actual Thanksgiving rolled around. Although spent mostly on my girlfriend’s couch, I now had saliva and talking (still a challenge) I had the energy to joke, laugh and really feel present despite completely weaning from all my meds. ALL OF THEM!
It’s amazing to think all these changes happened so quickly. The recovery that they warned could take months to a year to overcome seems to be snowballing as each day rolls to the next. It’s hard for me to not get excited and imagining Spring and Summer with renewed energy and excitement for life. I was already pretty excited for life before all this cancer nonsense, I can’t wait to see what’s to come!
This week my oncologist told me to cool my jets. To take it one day at a time and remember that I have a full road ahead of me including speech therapy, physical therapy, energy and stamina to regain. That returning to work isn’t even a consideration until my scan returns clear in January. (She also told me I’m still a healthy BMI and I don’t need to gain any weight! I’m going to pretend I didn’t hear that last part because after losing 30 pounds including some extra baby weight ;) I was really looking forward to the eating part of this recovery!)
This week, I was told by my two oncologists that I am far ahead of others at this point. Even though to me the days seem long and the progress slow, if I stay present in the day to day, I am making great progress. When I remind myself that only two weeks ago I was on a liquid diet and vomiting every day unable to get out of bed. Now, I have moved my resting from the bedroom to the living room. Small victories. I am so grateful.
So, in the midst of my excitement to return to life, to reconnect with friends, and to remember who I was without a diagnosis, I am also reminding myself to be patient. To be present. To be appreciative and grateful. That the destination is not the goal, but the time I allow my body to heal will allow me to return stronger and healthier than before.
This time is as important as the treatment I was enduring. I will continue to rest. I will continue to remain patient. I will continue my naturopathic, acupuncture, chiropractic treatments. I will allow my body the time it needs to heal and understand that I have made tremendous progress.
As my doctor said, I’ll cool my jets and allow the healing to do its work.
I’m just not sure my doctor has ever had a patient as determined as me.
Life is (still) good.
I am mama of three beautiful babes; two sons whom I have the privilege of raising and my daughter who lived for 33 sacred days.